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Velo-Cardio-Facial-Syndrome
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The BOOK... CLICK ON COVER or TITLE TO ORDER
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Explore numerous sites with information on every
subject you may want or need to know about VCFS. Resource information has been added and will be updated on a regular basis.
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Support is for
everyone. Whether you are a parent with a new VCFS diagnosis or an
adult with VCFS. Or a professional that wants more information. There
are others to talk to....share and understand. A listing of support groups is available and will be updated as additional sites are obtained. |
| Bulletin Board | Contests | Vacation Specials |
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This is a board to post and share information on new books, new laws that can affect our children, announcements, feedback, suggestions, etc... and not a list or support group discussion forum. Coming soon! |
Fun for all! Enter to win FREE prizes! Coming soon.
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Every month there will be featured special resort condo's at special rates. These are timeshares (sleeping 2,4,6) for those that need a special time away to relax. Also, coming soon! |
Copyright ©
vcfs-22q11.com Contact: SHERRY
BAKER-GOMEZ
This site was last updated
Tuesday, November 16, 2004
To report broken links and any other errors on this site please contact
MISSION
The aim/mission of this site with its referrals, contact numbers, activities and references is to provide awareness of VCFS through education, advocacy, and reform.
EDUCATION:
To enhance the knowledge
of 22q11 in it's totality to
prospective parents, recent parents,
parents whose child has already been
diagnosed with the condition,
the public, families and professionals, through written educational
materials and a computer networking community.
ADVOCACY:
By strengthening the voice of those with
VCFS and their families to speak on their own behave through knowledge and
understanding. Giving power and validity to family concerns.
REFORM:
To improve the quality of life of those with
VCFS and their families and to have a more positive comprehensive learning
experience. Free from blame, shame or fear.
ACTIVITIES:
To involve and brighten a moment in time of
those who live directly or indirectly with VCFS.